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What is Dysautonomia?

Dysautonomia refers to a spectrum of neurological disorders that involve the autonomic nervous system (ANS). A hallmark symptom of dysautonomia due to sympathetic failure is a fall in blood pressure during standing or neurogenic orthostatic hypotension (nOH). When the ANS misfires and produces excessive sympathetic activity the symptoms can present as hypertension or tachycardia (rapid pulse rate) as seen in patients with Postural Orthostatic Tachycardia Syndrome (POTS) and Hyperadrenergic POTS (hPOTS). Other forms of Dysautonomia include Neurocardiogenic Syncope (NCS), Orthostatic Intolerance (OI), Autoimmune Ganglionopathy (AAG), Pure Autonomic Failure (PAF), Multiple System Atrophy (MSA), and others.

Our Services Are Always Free

Online Support

Participants share experiences and provide support and wellness tips to strengthen their commitment to managing symptoms.

Mentoring Program

Senior members of our community volunteer their time as mentors to new and struggling members.

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If you or a loved one is spiraling due to dysautonomia, we can help direct you to resources in our online support community.

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Don’t Let Dysautonomia Isolate You

Dysautonomia Talk is a social enterprise dedicated to supporting and empowering anyone living with Dysautonomia or a related condition. Our founders are healthcare professionals who have been where you are now. We understand what you need without you saying it. Our online global support group is available 24/7 and is professionally managed by community managers who live with these disorders.

"Amazing group. What makes this group unique is its focus on hope and solutions. Dysautonomia is not easy to live with, so having a supportive community makes a world of difference. The admins are also extremely knowledgeable so you always receive a factual answer. It's a great mix of information and hope. I highly recommend it!”

Ioana V.

"Woot! Woot! To each in the group! Thank you for all the help, info, knowledge, and kindness you spread about all things Dysautonomia ."

Kathleen D.

"This is a great group. I think part of what makes it amazing is that the group

and its members are here for affirmation and support no matter how much or how often one posts."

Lori L.

What our members say

Support changes everything.

Just like how we provide you with a solid support system, our community does the same for us. We are proud to provide support to those with any form of dysautonomia, autonomic dysfunction, autonomic disorders, and the following related conditions:

  • Ehlers-Danlos Syndrome (EDS)
  • Arnold Chiari Malformation
  • Mast Cell Activation Syndrome (MCAS)
  • Gastroparesis
  • Autoimmune Disease
  • Long COVID
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